Community health workers support community-based participatory research ethics: lessons learned along the research-to-practice-to-community continuum.

نویسندگان

  • Selina A Smith
  • Daniel S Blumenthal
چکیده

Ethical principles of community-based participatory research (CBPR)--specifically, community engagement, mutual learning, action-reflection, and commitment to sustainability--stem from the work of Kurt Lewin and Paulo Freire. These are particularly relevant in cancer disparities research because vulnerable populations are often construed to be powerless, supposedly benefiting from programs over which they have no control. The long history of exploiting minority individuals and communities for research purposes (the U.S. Public Health Service Tuskegee Syphilis Study being the most notorious) has left a legacy of mistrust of research and researchers. The purpose of this article is to examine experiences and lessons learned from community health workers (CHWs) in the 10-year translation of an educational intervention in the research-to-practice-to-community continuum. We conclude that the central role played by CHWs enabled the community to gain some degree of control over the intervention and its delivery, thus operationalizing the ethical principles of CBPR.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Lessons learned in using community-based participatory research to build a national diabetes collaborative in Canada.

BACKGROUND Using community-based participatory research (CBPR) principles, the Canadian First Nations Diabetes Clinical Management Epidemiologic (CIRCLE) study documents the current clinical management of type 2 diabetes (T2DM) and complications in 19 partnering First Nations (FN) communities. OBJECTIVES To outline the lessons learned in developing and fostering community health partnerships,...

متن کامل

Modeling the principles of community-based participatory research in a community health assessment conducted by a health foundation.

The authors discuss strategies used and lessons learned by a health foundation during development of a community health assessment model incorporating community-based participatory research (CBPR) approaches. The assessment model comprises three models incorporating increasing amounts of CPBR principles. Model A combines local-area analysis of quantitative data, qualitative information (key inf...

متن کامل

Factors affecting community-based participatory research in Iran: a qualitative study on health sector stakeholders' view

Community-based participatory research is an important strategy to deal with public health challenges. However, the application of community-based participatory research in public health has encountered many challenges. This study was conducted to address academic perspective about the challenges and factors that are influencing on the community-based participatory research in Iran. A qualitati...

متن کامل

The Healthy African American Families (HAAF) project: from community-based participatory research to community-partnered participatory research.

During the past two decades, there has been an increased use of community-based participatory research in public health activities, especially as part of efforts to understand health disparities affecting communities of color. This article describes the history and lessons learned of a long-standing community participatory project, Healthy African American Families (HAAF), in Los Angeles, Calif...

متن کامل

Evolution of a community-based participatory approach in a rural and remote dementia care research program.

BACKGROUND Community-based participatory research (CBPR) approaches are valuable strategies for addressing complex health and social problems and powerful tools to support effective transformation of social and health policy to better meet the needs of diverse stakeholders. OBJECTIVES Since 1997, our team has utilized CBPR approaches to improve health service delivery for persons with dementi...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:
  • Journal of health care for the poor and underserved

دوره 23 4 Suppl  شماره 

صفحات  -

تاریخ انتشار 2012